I’ve never had a problem with Sainsburys not turning up. In fact they have phoned a couple of times to ask if they can come ten minutes early. Ffosse you can get a money saving offer from your first online shop from here.
I’m going with Tesco but won’t order until around Sunday - that means I’ll be able to get one of their £2 delivery slots for Tuesday or Wednesday afternoon.
I went to the chemist today and again had to rest halfway on the bench outside the mosque. It’s only a quarter mile walk but I was sweating with heart pounding for a few minutes until I felt able to carry on. Similarly, on the way home I had to stop on some steps while my breathing became easier. I don’t have a chest infection or fever as I take my temperature four times a day and it’s been normal. When I’m in the house I feel fine if a little tired. Yesterday I had a sleep in the afternoon but still managed 9 hours at night.
Am looking into one of those motability scooters - a bit desperate, I think, as there’s nothing wrong with my legs, but I’m not able to get out and about except for very short distances. I’ve been examined twice now by doctors who say it’s a combination of everything my body has been through.
It’s only 16c today but still pleasant - I would have given anything to be able to walk around our botanics, enjoying seeing the new flowers and plants but I just can’t. With a scooter there would have been no problem. I do hope my condition isn’t permanent - it’s been 9 days since my last chemo so I don’t think I can blame it entirely on that.
Good news that you’re planning to have your shopping delivered Ffosse. It’s one less thing to worry about. Maybe you should arrange for your pharmacy to deliver too until you are feeling a bit stronger.
I was told that the chemo stays in your body for weeks, so each cycle will build up and perhaps make you feel more tired. I’ve not really noticed this too much myself but we are all different. You have had surgery as well so that will probably add to your problem.
It would be great if you could get a mobility scooter, lots of people, young and old, use them round here and of course they are all used for different reasons. I’m sure one would transform your life Ffosse.
The only problem with the scooter is that there are 8 steps leading into my house. But I’m going to investigate one, anyway.
Yes, I’m looking forward to getting my groceries delivered. It will actually work out cheaper if I stick to £2 delivery slots as the Co-Op I’ve been using is expensive and small so there isn’t much variety there. Tesco is cheaper for almost everything and I get my milk from the shop below which isn’t extortionate.
Just had a phone call from the haemotology nurse to see how I’ve been doing. Nice that they care enough to call. She doesn’t seem worried about my lack of energy, saying that it’s not surprising after what I’ve been through. And she promised that I would feel better after the chemo.
You’re sounding a lot more positive Ffosse which is good to hear. Do you not have an entrance hall where you could leave the scooter? You will also have to have facilities to charge the battery. I think the best thing is to chat with someone, I’m sure most problems can be overcome.
Given your disabilities, why not, with the aid of a local council Occupational Therapist, apply for a (mandatory) disability grant to have a ramp built either instead of or as well as the steps???
Hi Dreamy just came to say hello.
I hope you are Ok.
I just made my first Tesco online delivery shop - they’re delivering on Tuesday between 4 and 5. I had to, really, as there was now way I could shop like I used to.
Good for you Dreamy:lol:
Spent today thinking it was Sunday 'til about 6pm. Next week is when I get my bloods taken on the Monday and have chemo on Wednesday so not too long now.
The session shouldn’t be as long as last time (10 to 6:30) unless they want to give me another blood transfusion. I hope not as it just adds another 2 hours to the process and that’s before the chemo begins.
Apart from that, I’ve been more or less the same: still too tired to walk far and prone to sleeping during the day. I do have one very busy week in May where I have an MRI, a CT scan and see the consultant. I’m trying not to think about it, but I’ll be getting taxis there and back.
Ffosse, I’ve found that with my chemo by the time my next cycle is due, I’m feeling stronger, so hopefully by next week you will be feeling better as your blood should be getting back to normal. The long sessions are not good, mine start at 8.30 am (I leave home at 7.30) and usually I’m finished by about 3 pm, so a long day and tiring.
Hope you’re having a good day today!
I’m OK today…just waiting for my Tesco delivery.
Today I visit my nurse to get blood taken prior to my chemo on Wednesday. I’ve been feeling better and dread the thought of chemo again, still, it must be done.
Ffosse, the best time is when you have had you last session of chemo because you feel better when all the side effects of chemo come to an end.
I was worried about you Dreamy.
I just hadn’t seen you today.
Keep strong my lovely friend:lol:
So true Twink. Ffosse, I never feel well the day I have my chemo, which this time is Wednesday, same day as you, but after that I usually have three good days when taking the steroids. I try to get out for an hour on good days and bad as it sometimes helps to be out in the fresh air. Have you got anywhere with the mobility scooter idea?
The scooter idea has gone…unfortunately there are too many steps up to my house which I share with others.
I can’t wait for Wednesday to be over - looking forward to Thursday already. Still, at least this time it should be quicker.
Shame about that Ffosse.
Same as you, will be pleased to get another chemo cycle over but will look forward to my fish supper from the chippie afterwards! Something to look forward to!
I generally eat pretty lightly on the day I have chemo. I’m not really that worried as I’m getting a taxi there and back - it will soon be over.
A nurse just phoned me up asking about my chemo on the 9th. No, it’s tomorrow I said.
She insisted it was the 9th and it turns out that this is extra methotrexate treatment on top of my normal chemo - I still have to go tomorrow but on the 9th they’ll keep me in for a few days which I’m not happy about having had no letters or prior knowledge of this.
I really don’t want another hospital stay; I hate the place.