Goodnight Dreamy.
I hope you sleep well.
Tomorrow I resume my chemo; I just hope I feel ok.
Hope it all goes well Ffosse. How long do you have to spend on the unit? Iām usually there for around six hours. I tend to sleep some of the time.
I saw my oncologist today and he has agreed to continue my treatment further once the current cycles have finished, so feeling happy about that.
Good luck for tomorrow and hope you feel well.
Well it was 10 'til 6pm last time.
Tomorrow should be less - more like 4 hours - as one drug they can simply inject me with. Hope I feel OK afterwards as Iām in two minds about whatās caused my chronic fatigue - the chemo or the infections. There are signs of me feeling less tired although I did go back to bed today from noon to around 4.
I hope itās the infections as Iāve only had one round of this chemo so far, which the infections interrupted.
It is difficult to tell I suppose.
You will have to see how you feel after tomorrow Dreamy.
I will be thinking of you.
The tumour has definitely shrunk in size - I can tell that by the fact that I have normal arm and hand movement, and my hands are no longer tingling.
This is as a result of the radiotherapy, steroids and the one round of chemo Iāve had so farā¦I just hope I donāt pick up any more infections.
I hope so Dreamy, I really do:lol:
Goodnight Dreamy.
Hope all goes well tomorrow.
Ffosse, I hope all goes well for you tomorrowā¦ 
So a new tumour/growth/cyst has been discovered in my perianal area. More time going by whllst my doctor is told and they decide what to do. I actually felt the lump last night and wondered what it was.
Chemo not started yet.
Try not to worry until they know what it is:!:
I do understand that you must be afraid, but constantly thinking about cancer will stress you, and that can help the tumours to thrive. Lumps in that area can be lots of different thingsā¦so please try to put it out of your mind till they are able to assess what is causing it.
Theyāre having to give me blood as my haemoglobin is low- Iāll be here until 6 once more.
Oh Dreamy, I have been thinking of you, since I awoke. Another tumor, l hope chemo can sort this. Please keep us updated.
You are in my thoughts and prayers.
I think that will build you up and make you feel a bit stronger. Try not to worry too much, easy to say I know and Iām one of the worst when it comes to that. I find the chemo nurses are amazing, always willing to listen and help in any way they can. Positive thoughts Ffosse.
It turns out that it could well be sonething benign.
Itās 1pm and I havenāt had any treatment yetā¦ Iāll probably get out of here when the place shuts at 7:30.
Still not been treated at 1:50 - pharmacy hasnāt made up my drugs, and the other department hasnāt made up the blood. Feel like ripping out the canula and going home. Why have an appointment for 10 and no treatment almost 4 hours later?
Your appointment at 10 would be based on your chemo Ffosse. Things have changed havenāt they, I have been sent home on three separate occasions when theyāve not been able to give me chemo for one reason or another.
Hope the still give you the blood but it may have to be brought in from somewhere else to get a perfect match.
Half an hour left of this blood transfusion to go then Ill start the chemo; if I knew how long this all was going to take I wouldnāt have left the house ths morning.
Oh poor you.
You must be worn out.
That was an ordeal.
I got a blood transfusion which took about 2 hours - they said my haemoglobin was low and I needed one. At least I finally found out what blood group I am (A Positive).
The chemotherapy itself didnāt take that long (apart from the 4 hours it took them to make it up). One drug is a thick goo which they injected into my stomach. I was sent home with the dosette box of tablets I must take for the next week - steroids, others etc. They also gave me a drug to keep in my fridge until Friday when the nurse at my GPs will inject me with it.
Iāve had differing answers as to why Iām so knackered all the time (I donāt believe itās the cancer). They mention the infections, my low red cell count etc. but Iām really none the wiser. Compounding the problem is that I have duplicate appointments for different dates to see the Consultant, have another MRI and a CT scan as these were sent out to me by mail. Sorting that out was a nightmare with the Clinical Haemotologist but I finally have on paper and on my phone all the correct appointments.
Then I must make appointments to see my GPās nurse two days prior to each chemo to get my blood taken.
I found it all confusing; Iām not sure how someone much older and less on the ball would manage the whole thing. I can understand why people donāt want chemotherapy.
I ate a cheese and pickle sandwich, some biscuits and had a small cup of coffee. I donāt feel sick, but am having something simple like scrambled eggs for my tea.