No, I’ve been off the amytryptiline for a while; I only took that for nerve pain when I had Carpal Tunnels.
I thought you had Dreamy.
Good evening to you.
Are you having a good day?
Hi
I really feel for you Ffosse.
My health issues are minor compared to yours.
The new antibiotics are really knocking me about.
I feel quite humbled by the way you are dealing with things.
I’m not doing that well.
After a week or 10 days of only being able to walk short distances before being out of breath and having to rest I got it checked out this afternoon. I phoned the specialty haemotology department and they arranged an ambulance for me. I was a bit fearful they would keep me in again so packed a few things.
My vitals were normal. They took 5 vials of blood which tested normal, then did an ECG and a chest x-ray which were both normal.
They explained that the antibiotics would have partly explained my complete fatigue and thankfully those are nearly over. But it’s more the totality of what I’ve been through in the past 8, 9 weeks - surgery, chemotherapy, antibiotics, more surgery which has left me knackered.
If I want to go outside I"ll just have to take things very slowly and not get annoyed with myself if I’m walking very slowly or become breathless and have to stop. Still, my chemo restarts on Wednesday and I can’t say I’m looking forward to it.
A friend has been urging me to order groceries online from Tesco, and while I know it makes sense I just can’t bring myself to do it yet.
I can see how your friend is trying to help Dreamy, online order then that is done.
There are some horrid viruses going around at the moment, so please be careful. I have an awful sore throat and do not feel good.
I would hate you to go down with a virus.
I can understand that you are dreading Wednesday.
Not so much dreading it, but I will ask them a few questions before treatment.
On Monday I see the nurse at my GPs who will look at my neck wound (should be the last time) and my GP is going to phone me.
I hope your neck is nicely healed Dreamy.
You have a good relationship with your GP, that must be a comfort.
Don’t be fearful for your chemo Ffosse, if you are well enough it will be another step towards recovery. They will give you all the drugs you need in case you feel unwell after, anti sickness and tummy troubles and will give you telephone numbers to ring if you need help.
You’ve had so much on your plate the last two weeks, chemo, infection, antibiotics, a serious operation which could have left you paralysed, nil by mouth for too long. No wonder you’re exhausted.
Like Sweetie, I hope you’re healing well. I also hope you’re getting enough nutritious food. You need to eat right to get your energy back and I don’t know if anyone has invented a cancer/infection/antibiotic proof diet but maybe someone should think up a service where cancer patients can phone a number and someone will come over and cook them their favourite meal when they are at their lowest.
Dreamy I hope you are OK.
I awoke at 1:30 and, after a cup of coffee, could easily have gone back to bed for another 8 hours.
Not so tired now, though, at 5:45 - I’m going to stay up 'til 9 or so.
Still haven’t set up ordering food online from Tesco - something is putting me off.
You do have to pay Tesco.
Iceland is free.
What’s annoying me is that with Tesco you have to pay £4 unless you buy £40 worth of groceries…I would normally buy only £20 at a time.
Then there is the paying for delivery, unless you purchase an ongoing delivery saver. You’re still paying but it only works out well if you get a lot of deliveries.
#SIGHS# I live only half a mile from Tesco and it used to be such an easy shopping trip to walk there and back.
Tomorrow I visit the nurse at my GP’s practice. That’s half-way to the Co-op so I’ll just go there even though it’s a small shop with limited goods and quite expensive. I really need apples and grapes, and something with which to make a meal or two.
I have a thought Dreamy.
I used work for a volunteer group.
I used to shop for poorly people.
Check out your local volunteer bureaux.
Thanks - that’s a good idea. There’s a mental health resource I used to go to and they would know; it’s only a short walk away so perhaps I could get there tomorrow after seeing the nurse.
I feel such an invalid.
But you just need a little help.
Goodnight my friend.
I will post tomorrow. X
I saw my GP as well as the nurse today. My neck is feeling and looking fine.
My GP says that it’s probably as a result of the infections I had that I am so tired all the time and so fatigued that I can barely walk to the shops. She said that from her notes I had more than one infection going on and, like the flu, will need time, possibly weeks to recover from this.
She also explained a bit more about the type of cancer I have and how I was simply unlucky to get it having had Hodgkin’s Lymphoma in 2016, but that they weren’t related.
As well as chemo starting again on Wednesday, I have a lot of appointments coming up - another whole spine MRI, a CT scan, further appointments with the consultant etc.
This will mean many more taxi trips - I wouldn’t even be able to walk uphill to the nearest bus stop without discomfort, so I don’t mind the extra expenditure - my comfort comes first.
Thanks for the update Dreamy.
Sorry you are so drained.
Using a Taxi is wise option.
I’m feeling less tired today and I slept well last night, around midnight to 9 this morning. Also, today I got to the Co-op and bought things I needed like salad, fruit, bread and cheese.
That is fantastic.
I’m glad you are having a better day today.