I've had my chest x-ray

[Val_J]

I’m pleased to hear you’ve got that over with Ffosse. I only have the steroids to take home now but do feel that for the three days I take them, they help me feel ok. It’s when they stop that I have a low period for a few days and then I begin to pick up again.

Appointments can be a problem but I make mine myself with my local hospital, apart from the chemo which is out of town, I have to go three more times within the two week cycle. You just get into a bit of a system really and the nurses should keep you on the right track.

Hope you enjoyed your scrambled eggs, a good choice!

[Sweetie_pie]

@Ffosse

That was an ordeal.

I got a blood transfusion which took about 2 hours - they said my haemoglobin was low and I needed one. At least I finally found out what blood group I am (A Positive).

The chemotherapy itself didn’t take that long (apart from the 4 hours it took them to make it up). One drug is a thick goo which they injected into my stomach. I was sent home with the dosette box of tablets I must take for the next week - steroids, others etc. They also gave me a drug to keep in my fridge until Friday when the nurse at my GPs will inject me with it.

I’ve had differing answers as to why I’m so knackered all the time (I don’t believe it’s the cancer). They mention the infections, my low red cell count etc. but I’m really none the wiser. Compounding the problem is that I have duplicate appointments for different dates to see the Consultant, have another MRI and a CT scan as these were sent out to me by mail. Sorting that out was a nightmare with the Clinical Haemotologist but I finally have on paper and on my phone all the correct appointments.

Then I must make appointments to see my GP’s nurse two days prior to each chemo to get my blood taken.

I found it all confusing; I’m not sure how someone much older and less on the ball would manage the whole thing. I can understand why people don’t want chemotherapy.

I ate a cheese and pickle sandwich, some biscuits and had a small cup of coffee. I don’t feel sick, but am having something simple like scrambled eggs for my tea.

All sounds very confusing Dreamy.
I hope you enjoyed your eggs.

[Ffosse]

Well after I see the nurse on Friday I have the rest of the month to myself until I see her again on the 30th to get blood taken.

That’s a good half a month where I don’t have to see anyone.

[Sweetie_pie]

@Ffosse

Well after I see the nurse on Friday I have the rest of the month to myself until I see her again on the 30th to get blood taken.

That’s a good half a month where I don’t have to see anyone.

That is something. I hope the weather improves and you are able to go out.

[Sweetie_pie]

Good Night Dreamy.
See you tomorrow.

[Ffosse]

Just realised that my house is rather untidy; I tend to have everything hospital and drug related on the living-room and kitchen tables for easy access. I’ll need to drag a hoover round this weekend I think.

[Sweetie_pie]

@Ffosse

Just realised that my house is rather untidy; I tend to have everything hospital and drug related on the living-room and kitchen tables for easy access. I’ll need to drag a hoover round this weekend I think.

Please don’t overdo things Dreamy.
I wondered where you were today.
How are you feeling?

[Ffosse]

I’m feeling OK; still tired though. I went back to bed this afternoon for a couple of hours.

[Sweetie_pie]

@Ffosse

I’m feeling OK; still tired though. I went back to bed this afternoon for a couple of hours.

Good for you Dreamy.
I would do the same.

[Val_J]

@Ffosse

Just realised that my house is rather untidy; I tend to have everything hospital and drug related on the living-room and kitchen tables for easy access. I’ll need to drag a hoover round this weekend I think.

Nice and steady Ffosse, perhaps a few minutes at a time, try not to overdo it! I’ve done that so many times myself, felt ok, worked too hard and suffered the consequences!

[Sweetie_pie]

Good Night Dreamy.
It is TV time for me.
I hope to see you tomorrow.

[Ffosse]

I visited the nurse at my G.P. surgery.

She took off the final dressing on the back of my neck where I had the two operations and it’s healed fine.

She then injected me with a drug I’ve had in my fridge since receiving it from my chemo on Wednesday. Into the top of the arm it went.

Then I had to make appointments to get bloods taken 2 days before each upcoming chemo session - they can’t use blood that is too old; it’s just to tailor exactly the drugs they need to give me.

Then I visited the chemist to pick up a prescription and hand in a new one.

After that, I visited the deli where I bought a roast gammon and salad sandwich and a BLT. The gammon sandwich was too dry and not worth the money. I have higher hopes for the BLT which I will eat for my tea. I’m putting off grocery shopping until tomorrow as the supermarket is in the opposite direction.

I also visited the vape shop for my favourite juice.

It’s still cold and damp here with that East wind so I’ve got a hot water bottle and the heating on. I decided that as I’m ill I’m not going to be counting the pennies concerning my utility bills - my comfort comes first.

I slept well last night even though I slept through part of the day too. Today I’m aiming not to go to bed until 9pm, but I’m still knackered, especially when I’m walking outside.

I’ve been spending a fortune on taxis and deli sandwiches and overpriced Co-op groceries. I cant realistically get the bus to the hospital, though, as it’s some distance to the nearest bus-stop, uphill, and I have to stop. And I can’t get down to Tesco and do a big shop - I’d much rather make my own sandwiches. But, again, my comfort and convenience comes first when I’m ill. Spending a lot of money annoys me as I’m normally pretty frugal and save up regularly. I really pity those people who have to travel 40 miles to the hospital for their appointments.

I’ve no appointments 'til the 30th but after that my diary is loaded, MRI scan, CT scan, nurse, the Consultant and more chemo. I’m hoping to use the second half of April to relax and hopefully get a little better.

[Sweetie_pie]

Good Afternoon Dreamy
You have been a busy bee.
I am glad that you were able to go out.
Good news on your on your neck.

[Ffosse]

It’s forecast to be 20c next Wednesday and Thursday - much better than the wet, windy 6s and 7s we’ve been suffering.

Winter has lasted right up to mid-April this year and is the longest and coldest for some years.

[AnnieS]

Seems you had a good day and the deli sandwiches are money well spent if they make you feel happier. Glad to see your op scar is healing well and hopefully the mobility in your arms has improved now.

I do think you should consider an online grocery order. It’s so convenient and they are supposed to shop for you as they would shop for themselves (picking out the best bits and that kind of thing). Why waste your money on overpriced stuff when you can pay as little as £1 for a home delivery?

[Val_J]

Ffosse it’s so good to hear you’re feeling a bit better and getting things sorted. I tend to agree that on line shopping could be a big help for you, but on the other hand perhaps you enjoy looking round the shops and choosing your own items. It does help to pass time too.

Keeping warm is important, my heating bills have been much bigger this winter, I was always of the mind that if I was cold I would put another layer on! Not any more. Hopefully some warmer weather is on the way.

[Sweetie_pie]

@Ffosse

It’s forecast to be 20c next Wednesday and Thursday - much better than the wet, windy 6s and 7s we’ve been suffering.

Winter has lasted right up to mid-April this year and is the longest and coldest for some years.

I think warmer weather lifts our spirits Dreamy.

[Ffosse]

At least sunnier weather does…right now it’s foggy outside.

I’ve managed to stay up today, not going to sleep in the middle, think I’ll hold out 'til around 9 pm.

[Sweetie_pie]

@Ffosse

At least sunnier weather does…right now it’s foggy outside.

I’ve managed to stay up today, not going to sleep in the middle, think I’ll hold out 'til around 9 pm.

That is good Dreamy:lol:
I hope I get to see my funny Dreamy even if it is briefly.

[Ffosse]

Had a bath and shave - my beard is only growing in a few places thanks to the chemo, but at least I don’t have to shave my head as that hair appears to have stopped growing but not fallen out. Put on some clean clothes. Then I got out to the Co-Op again for some groceries, still out of breath during short distances. I really miss going down to the Ocean Terminal mall where they have an M & S. I used to be able to walk there and back even though it is uphill all the way back, but no chance with my current health.

But at least the wind has changed and is no longer blowing in from the sea - much milder today. I’ve got a few windows open and am able to turn off the heating. Still got my hot water bottle but at least the house will be fresher.