Hi, Ffosse, you sound like you are in better spirits and better prepared than your last hospitalization, and I wish you well. I know how good it felt to get back home for a while to have some space and reorganize for this visit.
The stem cell transplant option sounds most promising, and your team sounds very determined to find a treatment plan that works for you.
Thanks Surfermom - yes I do feel in good spirits after yesterdayās chemo which didnāt finish until 11 pm but I still woke up at 6:30 am so a very good nightās sleep.
The stem cell transplant is still some time off, not until after theyāve finished with this round of chemo but Iām feeling good about it. The 2 doctors who travelled down from the other hospital (there are 2 big hospitals in Edinburgh) were very thorough in explaining the procedure to me and I had no trouble in signing the consent forms,
Physically I feel fine apart from one or 2 niggles but nothing compared with what Iāve been through before. I think hospital rot starts to settle in after around 7 days when I start to get bored, then Iāll watch a Beach Boys concert on YouTube and Iāll be happy again.
The 5 days at home was, as you say, very good at unclutterling my mind. I just pottered around the house, got to the local shops with little panic and enjoying eating solid food again. What a difference that made to eating nothing for a few days then gorging myself on Ensure Plus.
I had to laugh. For ages Iād wanted to transfer my iTunes music over from my Macbook to my iPhone just so I could dip into it from time to time. I mainly use streaming.
I have 9440 songs and a Macbook with only one port, I had one adaptor for the lightning to USB-C but I couldnāt charge the Mac as I was using that port for my phone. Well transferring and changing the codec of some songs takes time and is processor intensive, the Mac gets very warm. So I made it to 4000 songs left to sync before the Macs battery conkers out. So overnight I recharged the Mac and started the process again, I was relieved to find that the music Iād transferred the first time was on the phone.
This time it completed the task with 30& battery left much to my joy.
I suppose the moral is donāt buy a pc with only one port. I do have an adaptor but the phone needed it to transfer from the Macs USB-C to lightning on the phone. Otherwise I love the Macbook.and this is the first time Iāve had to do any thing moderately difficult on it - Windows pc users will be laughing at me, but I got my music.
Not feeling so good now from my dozens of chemo drugs they gave me this morning. Iām sure it was then that the nausea then vomiting which has slowly encroached the afternoon and evening. Theyāve given me an injection and tablet but it hasnāt made much difference.
Sorry to hear youāre not feeling too good after your drugs Ffosse, Iām hoping the feeling will pass soon and you will be able to have a peaceful nightās sleep.
Iām truly sorry about the nausea. I know itās a dreaded side effect. My daughter was so ill that we literally camped out on the bathroom floor when the medications didnāt quite do the trick. This too shall pass, so hang in there.
Iād be interested in knowing more about your stem cell transplant.
Thatās great on the music transfer, Ffosse, but I was wondering why you didnāt just access your library on your iPhone via your iTunes account directly? Music is unquestionably one of the best diversions. Are you watching an old Beach Boys concert? I saw them last year and they are coming to town again this year. They are aging like we are, but their music is timeless.
Surfermom, thanks for the kind messages of support.that goes for everyone on this thread. Iāve never been this Iāll while in hospital and Iāve to wait for the doctorās round to finish before they decide what drinks to give me. The overnight doctor didnāt do what she said she would. At one point in the night my pulse was 48 itās never that low and 50s during the day is worrying; itās always in the 70s.
I donāt stream music via Apple music, but have an iTunes collection. Iām us Google Play Music for all my streaming music,but itās good to have my iTunes music on there too.
Iām doing better now, theyāve change the time of some of the drugs which might help a bit. And thereās only 1 more day of this chemo to go.I tend to catastrophise things at times but itās not easy to communicate now that my Consultant has confirmed my delirium might return for a short while and I know that it has as Iām skurring my words and forgetting words but no delusional thoughts yet.
Youāre an amazing bloke Fffosse. As you know I really am rooting for you to get through this latest episode - itās as if you are being treated like a guinea pig sometimes isnāt it mate?! But you are strong-willed and you will emerge victorious when this is all sorted out. I know it.
Take care buddy. Iāve replied to your PM btw
Thanks guys - your support on this thread has been overwhelming,
I had to get down to the serious sometime and tonight was the night with my sister, Anne. We went through getting a will signed and that was the easiest part. Then it was getting into all my tech gadgets, being able for my sister to notify everyone on my up to date contacts list. Then it was my watch collection which will go to the Teenage Cancer Trust - anyone whom the Who supports over the years with their concerts gets my vote. Then itās just bits and pieces that my sister can donate to charity shops - a collection of about 10 clocks or so, clothes that are still in very good condition and assorted other things. Anne can select anything she would like.
I dont want a funeral so am going for a direct cremation - itās cheaper and friendlier to the environment.
Thatās not all thatās involved, my bank will have to be told as well as the power companies but thatās small stuff.
Of course I intend to beat them all, save my money by not dying and continue to play Bob and Neil on my head phones plus the Byrds, always loved them all.
Iām finding myself very close to you now, Ffosse reading some of your latest posts. Itās harrowing reading actually and I am seriously hoping you get yourself better as you know we all are.
You do right sorting out your will though, something all of us must do post-50 and itās on my agenda for later this year.
Our families need to know where they stand without any arguments, same goes for funeral costs - who wants their relations and offspring to have to sort all that out? It wouldnāt be right or fair on them.
Sorry to be morbid but itās all part of life and something very important that we need to face, whether we are gravely ill or feeling fully fit itās the same for all of us. A requirement.
Take care buddy and enjoy Neil Diamond, a great performer.
By the way, Iām with you about The Who and their Teenage Cancer Trust support. I know Roger Daltrey is chief patron of that charity and Iāve actually just started reading his autobiography - perhaps thatās a book you could read sometime, it could even be available as an audiobook? https://m.media-amazon.com/images/I/51r6ololCvL.SL210.jpg