Hi, sorry you are a mess when it comes to sleep cycles. My daughter had rituximab infusions and was knocked out from them and host of other medications.
I concur with the suggestion of exercise. Her sleep patterns improved when we made a commitment to go for a walk every afternoon at a time she usually had the urge to nap.
You need good food, good sleep, and good exercise to fuel your body and mind towards regaining your strength and health. If you need ideas regarding any of these, just shout.
Thanks, Surfermom.
OMG - just woke up again in front of the telly, was convinced it was 7:30 at night 'til I remembered I got up at 4.
Itās so dark outside that it is hard to tell if itās morning or night, anyway.
I feel so surreal itās almost unbelievable. This canāt go on, and I must speak with my G.P. about it. Still having difficulty believing that my dreams were just that, dreams.
Yes Dreamy speak to your GP.
I hope this gets sorted soon. X
Am in hospital as my temp spiked at 39.5 this afternoon. None of the tests are pleasant but Iāve received one infusion of antibiotics so far with more tests and treatment tomorrow.
What meds are you on Ffosse? Sounds like you are reacting to one of them. Are you taking any vitamins or natural supplements in tandem with meds?
Plus what sort of things did you eat in the last few days?
Oh no Dreamy.
I know you hate being in hospital.
Get well soon my lovely friend. X
I donāt know whatās wrong with me but at least I lave a fighting chance in hospital. Had some breakfast earlier but wasntāt reallyhungry.
Moved to my old Ward 8- everyone knows me here.
Should really have moved last night but they were so busy.
You are in the right place Dreamy. x
How are feeling?
Glad you have some friendly faces there Ffosse. I hope they find out what is wrong.
Like shit really.
Oh Dreamy I know you hate it there.
You will be home soon. X
Itās just so disabling. Today my temperature has spiked a couple of times,leaving me with a headache. I couldnāt go home because then it would be out of control leaving me with a real chance of death. Iāve to leave these infusions a go until Monday, when, if Iām no better, theyāll try something else. Iāve never felt so close to death before. I know there is no way Iād survive outside of hospital and thatās a very scary thought.
Iād thought that I would at least get a break before the end of the year, being able to spend the weeks as Iād like.
Is hard even to know where I could have got an infection from, preferring mostly my own company and not going out much.
Iāve not even being eating anything that is bad for me - fruits and vegetables which I was washing first. They did say to ring them if my temperature was persistently over 38 which mine was, hitting 39.5 once. At those temperatures your body is liable to get all sorts of nasty things, even if youāre not a Non Hodgkins sufferer.
Oh Dreamy you are fed up and scared, I understand that.
Try and relax, once the infection is under control you will feel better.
I will pop back later to check on you. X
I cut my sister out of my life. She only came to see me if I was ill in hospital. The rest of the year Iād ask her to Tescoās or Costa for coffee and she would always make up an excuse.
Plus she was like a little ghoul, waiting for me to die. Well now sheāll never find out plus I wonāt be leaving her any money.
Oh Dreamy, that is awful.
I am so sorry to read this my lovely.
Please do not think that you are going to die.
I am sending you hugs, although I have tears over this.
have you or anyone [medical] consider the use of cannabis?
No - itās snake oil AFAIAC.
The doctors are aiming to have me home by the beginning of the week which is somewhat reassuring. They have no idea what caused the infection.
But at least they should give me a bag of antibiotics this time.
