Yay Dreamy something new for you. x
Have just had to put my light on - I really dislike the dark afternoons.
Crikey it is still sunny here Dreamy.
Not now it isnāt.
You made me laugh Dreamy. x
No, it is pitch black now.
Iām still hampered by going to bed during the day which is starting to annoy me. I get up at 9 feeling refreshed. But by about 1pm I am so tired that I have to go back to bed, usually getting up again at 4. I know I should listen to my body but this is getting ridiculous.
Iām hoping that itās still a reaction to all the chemo I had and not something new which is making me tired all the time.
Oh, Dreamy I missed this.
I am sorry you are still feeling drained.
I expect it is the reaction of the chemo, but I am no expert.
Cancer related fatigue is still my main problem; it makes me feel as though I am still very ill with no end in sight.
For example, yesterday I went to bed at 6pm being completely knackered. I awoke sometime around midnight, not refreshed but still awake. I listened to podcasts 'til around 3 then fell asleep until 10am. You would think Iād have had enough sleep, but by 1 I was exhausted again and went to sleep until about 4. Itās 7:30 as Iām typing this and Iām longing to go to bed again.
Through this, Iāve not been eating properly, ie. no meals. Iāve subsisted on apples, pears, bananas and milk, so at least Iām getting some food but couldnāt summon up the energy to make a meal. Itās also reduced the amount of time Iāve been on the internet as it all seems too much and switching on the telly is easier. Iāve read that these symptoms can last up to 2 years or more after the cancer treatment.
So itās either a combination of the cancer, its treatment and the various drugs Iām on or perhaps just the chemotherapy. Either way, itās pretty disabling. Today I had to change my bedclothes and it took me ages just changing the duvet cover.
I really wish I could have a normal sleep cycle, waking up at 8 and going to bed at 10 before falling asleep at midnight but itās not working out that way.
Iāve tried not going to bed during the dayā¦but I wake up on the sofa 2 hours later with a stiff neck.
Iāve also not been out for days, weeks really unless I include minor excursions. Tomorrow I have to go to the chemist to pick up my meds but should be OK as itās not far away.
Itās silly but annoying: Iāve not been able to wear any of the Winter clothes I bought. Iāve got brand new jumpers and jeans but no place to go to, even if I could summon up the energy.
I am so sorry you are experiencing these side effects.
Maybe someone can advise.
I can only support you Dreamy.
I have missed you. x
Iām never far away.
I know, I do look for you. xxx
This forum is small enough to be able to find anyone and their posts quite quickly. I like that.
Me too. xxxx
But then I am all over the place. xxx
Iām considering buying an exercise bike from Argos as Iāve not been getting out much. One of the men I was in hospital with said that if I did, he would help me assemble it.
A very generous offer of his and helpful as Iām hopeless at assembling things. My TV I bought from Argos couldnāt be assembled as they had left out the screws necessary to attach it to its base. But they were very good and sent out a new TV complete with screws the next day.
I need to sort the fatigue out, and part of this, Iāve been told, is to do more exercise and my body will adjust. Itās not much fun waking up then a couple of hours later having to go back to bed as Iām exhausted.
Today Iām trying to stay up as long as possible. I got enough sleep last night and woke up at 6:50 this morning. If I can hold on and not go back to bed 'til 8pm Iāll consider this a success. Iām quite excited by the idea of an exercise bike, though, something new to try which can only be healthy for me.
So, I bought the bike but have zero chance on assembling it on my own - Iām not good at putting things together. Have messaged my friend and hopefully between us weāll be able to put it together.
Sorry Dreamy I missed this.
Donāt even try, wait for help. X
Nice that you are getting out and about. X
The exercise bike went back - far too complicated to assemble for someone who isnāt good at putting anything together except words.
Oh, I understand;-)
Say no more. x
I was going to go to bed at 8 but fell asleep in front of the telly until around 9:30, so I got a couple of hours sleep.
Thatās my problem. I also felt tired about noon and took myself off to bed until around 4. There was no physical way Iād have been able to stay awake and I got up at around 9 this morning so you would think Iād have had enough sleep.
Someone told me that the Rituximab injections I get every 2 months are associated with fatigue, also. I donāt know what to do. I"d just like to be like everyone else (or most people, at least) and have a regular sleep cycle.
Dreamy maybe someone on here knows.
I would talk to the Cancer nurses.