OMG Dreamy, you are having a bad time my lovely, I agree about the chemo.
I’m trying to keep up with this thread.
Oh dear Ffosse, you really have been through the mill lately. Hope you feel better soon.
Don’t feel any better today - they’ve tried out different antibiotics and I’ve been monitored closely. I’ve to be moved to a different ward later for some arcane reason.Feel like discharging myself and taking my chances.
I’m told Monday before I can get out but that’s no guarantee that I’ll be better by then especialy since they dont know what they are dealing with.
Best case scenario is that it is a brief gastrointestinal virus, but because my immune system is so low it really hits me heavy.
I didnt feel well before the chemo but was told that was the jag on Tuesday. I know this isn’t true now. The evening before this happened, I was eating things like coleslaw, cherry tomatoes and beetroot which may not have helped. These things always happen at night, I’ve woken up feeling a bit weak and ill before and it has worn off during the day but this hit me like a sledgehammer, I could barely walk. Still feeling weak but a little better tonight.
Ffosse, I am not criticizing, but I do think you seem to be constantly focusing on how well, or how ill, you feel… and that wont help.
I have been there myself, so I know how you feel, but if you allow your brain to only think about how ill you are, you will constantly worry and make yourself worse.
If I were you I would find something interesting, that will help to divert your mind and allow you to forget about the minor discomforts. If it doesn’t, or the discomforts are really bad, tell a nurse that you need help ( if they do nothing mention it to the ward sister).
One of the best ways to relieve the stress of cancer, is to try and forget that you have cancer at every opportunity!
Its more the inconvenience and disruption to my routine i dislike.
I think I’m going to discharge myself today as they’re not giving me one of my medications I’ve been on for years.
Unfortunately, they are more concerned with making you better, but if you want them to fit in to your routines, perhaps private care is your only other option.
Please dont post on this thread when you know nothing of my medications and are merely being sardonic. And no, don’t presume to know how I feel as you don’t.
Ffosse, have you asked the medical team why they have stopped one of your medications? I would have thought they would only do that if they thought you no longer needed it or it wasn’t doing the job it was supposed to do.
Try to relax a bit, I’m sure the hospital is doing all they can for you. These days hospitals don’t keep patients in longer than necessary, usually it’s just the opposite as beds are in short supply.
Wishing you well…
They say my blood pressure is low and this med isn’t helping. But I’ve been on it since 1995 and know that without it, I am about 20 times more likely to have a panic attack as my pulse goes up to around 120. The doctor knows this but doesn’t take it into consideration.
I’ve got my own supply of diazepam to take, (just 6 tablets I routinely have with me) but they don’t always work.
The virus you have,sounds like the one i had,I’ve had to have 3 blood tests,still my blood is abnormal,my platelets are to high,this bug knocked the stuffing out of me,…as for your medication, maybe you could reinforce how important this medication, that you take is,you know your body,more than anyone…i wish you well and hope you recover soon!.
I never mentioned your medications, that is something you need to discuss with your consultant.
I also wasn’t mocking, I was merely trying to explain that the hospital cannot deal with the personal disruption to your routines, they just do their best to make you better. Only private hospitals can do that for you!
I’d sooner you didn’t post regardless.
I don’t want to upset you, but my posts were designed to help you deal with your situation better.
I probably won’t post often, but nobody owns a thread, so I will continue to post where I can help others.
Well, they didn’t help me one bit and I’d be highly sceptical of your advice to others. But go ahead, knock people out with your ignorance. If i can be bothered, I’ll probably start a thread in self moderated so can just stop people like you, and your like, posting. As it stands, I’ve wasted enough of my mobile data on you today.
I’m trying to follow this thread.
Oh I am getting lost because!!!
Dreamy sorry for losing track.
Are you in hospital?
I think I saw that you have a bad virus. I am wondering about your chemo?
The signal here keeps dropping.
It makes it hard for me to read back.
I am home on Monday and will be able to support both you and Val better.
You both remain in my thoughts and prayers. I found a little chapel today, I lit two candles.
Thanks, yes, probably a virus on top of everything else including my chemo this week. I’ll be fine - I can sense it.
Hi. Sweetie. Yes, I am in hospital after contracting an infection or a virus. Im on intravenous and oral antibiotics to try and kill the old infection which I’ve had for about 6 weeks now. They’re basically throwing everything at the wall to see what works. If it’s a virus I should be feeling better by now but still dont feel great. On top of that I had a jag for netrophenia this week so my chemo could go ahead. The early morning hours of Thursday were the worst - I awoke to vomiting and a tepmerature plus I could barely stand up or walk. Haven’t felt that bad since 2014. I’m in hospital now and they’re going to give me the medication I was after. If they hadn’t, I would just have gone home for it. There are some things a patient knows better about their own body and medications than any doctor.
Thanks for the update Dreamy, every time I tried to page back the signal died.
I agree about knowing your own body Dreamy. You really are having a bad time, with these infections. Your immune system is comprised. I’m sorry you are back in hospital, I know it increases your stress levels. It is also a place where viruses lurk.
I am following the updates, I can’t always post at the moment. But I keeping you in my thoughts and prayers as always.
Thanks. Sweetie, your posts helped me greatly the last time I had cancer also.