I’m so pleased to hear it all went well for you Ffosse, you did well 
Just caught up here Dreamy. So glad it went well today.
I love the pics. x
So pleased to hear all went well for you today Ffosse.
I hope you are OK Val.
Just came to say Goodnight.x
I’m ok thanks Sweetie, bloods tomorrow, chemo Wednesday.
Goodnight Sweetie, Ffosse and any other late visitors to this thread!
The hospital just phoned me; they want me to come in for another methotrexate session on June 21st.
This means another dismal 4 days hooked up to drips. I wish they would just leave me alone. I’m sick of all the appointments, procedures etc.
I simply want a month or two to myself. After Thursday’s CT scan I have appointments next week with the nurse on Monday, the Consultant on Tuesday then chemo on the Wednesday.
Ffosse I understand that you must be feeling down and want to forget about your illness, but everything they are doing is to help you. If the doctors felt that it wasn’t worthwhile they would have told you so, so please try to think of the good days when you can smile.
Please don’t give up because many people can live for years with incurable cancer… I know because my close friend has survived for 4 years and is still going strong! 
I know it’s for my own good but I feel lousy. No energy.
It took me ages to walk to the store today; I had to rest on a bench halfway there, same on the return journey. And that is a very short trip.
I feel that my life has been taken over by taxi trips, appointments, procedures and it’s all got a bit much. They haven’t asked me how I’m coping, apart from the nurse yesterday who was able to sort out my mouth ulcers. And I resent paying for all those taxi trips - I don’t get any kind of benefits yet I have to use taxis - the bus stop is half a mile, uphill, in the wrong direction and I wouldn’t be able to cope with it.
Dreamy I know all this is taking over your life. But, it is to prolong your life. Try not to get too down. x
I’ll see what the Consultant says on Tuesday, but after this round I’ll never have chemotherapy again.
What about Patient Transport or Community Transport - find out about these in your area matey.
Ffosse, I know how you feel, but we have to go along with their plans for us as it’s for our own good. It’s a few weeks off so try to relax and enjoy the days you have to yourself. Can you plan a few treats for yourself like I do!
Offhand, I can’t think of any - I’m so exhausted.
When I was having Chemo, I was not allowed to drive so, when there was nobody to take me, my hospital organized transport.
Why not explain, to the people who look after you, just how bad you are feeling because they may be able to offer some means of transport.
I think I’ll have to keep on getting taxis. You’d have to be really ill here to qualify for any kind of transport.
From what you have told us, you are really ill, but nobody will think " He must need transport" you have to ask for it!
If I’m able to move about, walk, I won’t qualify for patient transport; I enquired about this recently.
Well I could walk, but they still sent an ambulance bus or volunteer driver to my home to pick me up, then I had to wait for the next one to take me home. It does involve spending a bit more time at the hospital though, because you can’t book it for a certain time like you can a taxi…but it was free.
When I was well I used to walk to the Morrisons near the hospital and back with 2 heavy bags - 5 miles total and I wasn’t even out of breath.
Now I can walk up to the corner where the mosque is and have to sit on the bench to rest, perhaps 400 metres.
Dreamy have you asked about hospital transport, my Mum could walk a little, but she still got it.
Have you got PIP yet?