Ffosse, it’s not easy is it, but I work on the basis that I will feel better in a few days and I just have to rest on the bad days. Do hope you have a positive meeting with your consultant. Tell him exactly how you feel, they are there to help all they can.
Val, I am so pleased to hear you are hanging tough and that your last appointment went well. All good things your way!
Ffosse, it’s a day at a time. I keep thinking about the day you were about town taking such lovely photos. Most pleaser is in the simple things and I hope you are finding plenty of them!
Thanks for all the good wishes. I’m having a few rough days where I have no energy…still, I’m getting a taxi to see the Consultant on Tuesday and am looking forward to what he says.
I think I’m feeling rotten because of the different types of antibiotics I’m on, too, but I’ll finish the course.
Let us know how you are doing Val.
Fine to say you are having a bad day. That way myself and others can support both you and Dreamy (Ffosse, I have called Richard Dreamy for so many years, it is hard to change it, and he said it was OK)
I hope you feel better soon Dreamy.
Tuesday will soon be here.
I’ll be glad when it’s Tuesday, I’ve got my appointment in the afternoon - getting a taxi as even walking to the bus stop wears me out. I appreciate that some people like their Easter and 4 day weekends but I prefer when it’s all back to normal.
Good night Dreamy.
Feeling quite dreadful today with fatigue - I’ve already gone back to bed twice for more sleep…I have no energy nor am I hungry but have forced myself to eat small amounts. I wonder if I’ll ever feel better.
I had a bath and it really took it out of me energy wise just to put the heating on, sort out clothes, have the bath and shave then dress myself again.
I think I have now come to terms with my condition Sweetie and am trying not to worry about it so much and stay positive. When first diagnosed it filled every waking minute. I have chemo again on Wednesday and now more or less know that I will have a bad few days and then I will feel better again. Even on bad days I try to get out but I have a very supportive hubby.
I have been worried about you today Dreamy.
I always look for this thread, to see how you are.
I am sorry you are having a bad day.
You see your consultant tomorrow if I remember rightly.
Yes, I’ll get a taxi there, see what he says. This doesn’t feel like flu or any other type of infection but the cancer itself.
Ffosse, you will feel better, worry drains you. I remember feeling like that before I last went to see my consultant. I was so worried about what he was going to say, but it was positive and I could have skipped out of the hospital!
Please let us know how you get on tomorrow.
I’m not worried about what my Consultant will say or do; I’m just wondering how I’m going to get out of this mess. I feel like I’ve got a couple of weeks, months at best.
This is my 2nd cancer, the first being in 2016.
Try and calm down Dreamy, you are scared and really down, but you will cope.
I am afraid no-one can switch off.
Even if we feel like it.
Let us see what the consultant has to say.
You’re just having a bad reaction to the chemo. It’s probably different from the treatment you had before. Having an infection doesn’t help one bit and the antibiotics may also be making things worse. Hopefully the consultant will have some good news. Fingers crossed.
Ffosse, Why were they not checking whether your cancer had returned, if your last one was in 2016? I had a check up every 3 months for the first 3 years, then every 6 months for the next 2 years and after 7 years I am still being seen every year… with the option of going back anytime if I am worried.
I understand this is normal procedure, with cancer, so I am wondering if your worrying is preventing you from listening to what the doctors are really saying, so make sure you ask all the questions you want answered when you see the consultant.
One doctor told me that you are never cured of cancer, but what he meant was …not that I was going to die, but that cancer can always return.
I did get checkups, that cancer didn’t return - I’m still in remission.
What I have now is a completely different type of cancer. I had Hodgkin’s Lymphoma (which was cured); now I have non Hodgkin’s and they tell me it is incurable. I can tell from the symptoms just how bad it is. There is no connection between the cancers at all - just bad luck.
Managed to get an 8:50 appointment with a GP in my practice (not my normal doctor but still very good). She prescribed me 56 more Oxycontin tablets plus a bottle of the liquid to take when things are really bad.
I brought up hospices, as her colleague had to me. I’m going to bring it up again with the Consultant this afternoon. I don’t want to die at home or in hospital, but a hospice is OK.
Ffosse please don’t worry about dying, you may have a few years left.:hug:
Here are 2 reports I found
Can you die from non Hodgkin’s lymphoma?
Prognosis. Survival rates for NHL vary widely, depending on the lymphoma type, stage, age of the patient, and other variables. According to the American Cancer Society, the overall 5-year relative survival rate for patients with non-Hodgkin’s lymphoma is 67% and the 10-year relative survival rate is 55%.
Is Non Hodgkins curable?
Indolent NHL types have a relatively good prognosis with a median survival as long as 20 years, but they usually are not curable in advanced clinical stages.[3] Early-stage (stage I and stage II) indolent NHL can be effectively treated with radiation therapy alone.31 Jan 2018
I know you are in pain and I hope they can relieve it but, if you can find something that makes you smile, it may make you feel a bit better.
I’ve been told that my cancer isn’t curable; it’s treatable to an extent but they didn’t spot it at an early stage.
It was only when I insisted on an MRI after having Carpal Tunnel’s Syndrome because I was having a lot of neck pain (which they blamed on a fall on the ice) did they find the tumour in my neck.
That is what happened with my Mum Dreamy.
It was a fall that brought a different kind of Cancer.
I hope you are OK today, and able to make plans.
I am always here for you.
I have a friend who has been living with incurable cancer for 3 years now. They can’t get rid of the tumours but her chemo has made them shrink a little.
I am no expert on cancer treatments, but I do know they have improved a lot in recent years…so please stay positive.