@mart Mart, reading this, I just want to say how incredibly strong you are. What you’ve been through is not small at all, physically or mentally, and yet you faced it, asked the right questions, and saw it through to the end. That takes real courage.
The worries you had were completely understandable. Anyone in your position would have felt the same. What matters is that you didn’t ignore them, you spoke up, you got reassurance, and you came out feeling steadier. That’s strength, not fear.
The fact that there was only 7ml left is actually a win, even on a tough day. And knowing the new lump is already within the treatment target must count for something, even if your mind is tired right now.
Feeling low, exhausted, and off your food doesn’t mean you’re failing, it means your body has been working unbelievably hard. An early night isn’t giving up; it’s recovery in action.
Please be gentle with yourself tonight. You’ve done something big. One day at a time is more than enough, and you don’t have to carry this alone. I’m really glad you talked to the clinician, and I’m really glad you shared this too.
Thanks! Just a matter of taking painkillers until everything dies down a bit. One of them is a liquid that the Pharmacy keeps under lock an key. A dose has to be syringed out to 2.5ml. It can go to 5ml. I tried that but I felt a bit more dopey than usual so went back to the lower dose.
A Phyllis Tuckwell person came here to see us this morning (organised by the GP). It was agreed that I don’t need that sort of care at present but It is only a phone call away if it is.
More my concern is Mrs mart. She has her own health problems (as written about) but still keeps trying to do everything immediately. I encourage her to take life easier but she finds it difficult. I’m working on it.
With the Radio Therapy done, a few side effects have set in. One is the bladder bleeding but as mentioned, that was present to a great degree before the therapy. This is tending to ease off a bit now (fingers crossed) but another one has set in. My innards are inflamed I think. It’s quite painful at times. No detailed description. Suffice it to say I’d better not go too far from a toilet. Both of these side effects are well-documented and I can only hope they subside in the coming days/weeks.
Our daughter leaves for her home in Spain today. We’ll miss her lots. Her and our son who both stayed here for 3 weeks, one after the other, have born the problems well. After 6 weeks of not having to face life on our own, it will come as quite a shock. We have our local sons and grandsons and they will do anything needed but it’s not quite the same as having help staying in the house. I expect we’ll survive.
I feel for you Mr mart, especially with the bladder bleeding. FWI I have started the radiation therapy myself and, so far, the side effects are minimal. We will see - the treatment lasts seven weeks…
Pleased to read that Besoeker. I hope all the other trips go the same way. Are all the Radio Therapy machines all the same? The one used on me was huge and revolved around the body to a degree. Is yours like that? I was quite impressed with it to start with but grew to be not quite as fond of it by the end of the treatment.
Nephrostomy dressing and bag was changed this morning.