Yes Mart and really sorry if any on my posts come over in the wrong way. Treatments are nearly always available in this High Tech World of ours and can make a lot of difference of course to everyday life.
My road is difficult to talk about as I hope to be taking a top specialist through the courts one day for 100% Neglect.
It is my wish for not just the earlier treatment of myself as I now know of others that have been at the hands of this person in a very detromental way. I can’t honeasty answer why he is still in the same Position 'workwise…But he is.
This I know is a rare incident and putting that aside for the time being as all of my other treatments over these 3 years have been of a very high standard and kindness went hand in hand.
I hope you get some good results soon Mart as it is a lot to deal with
I find strength from out of the blue at times and hope you do also.
I keep busy with many Hobbies as distraction is good for us Mentally. Also Seems to have a knock on effect to our Physical Self.
It does help to offload by writing about it here, where people can either read or ignore the thread. I never corner people at bus stops or my neighbours and talk about it. Some of the neighbours have an idea but to outward appearances, I’m still as I was. If they ask, I tell them I’m OK like many of us do …regardless of how things are.
Some people feel so ill that they’d have no inclination or strength to write about procedures. I think it strange that, even with what’s happening, I can still feel OK enough to do it. I can see it could be seen as attention or sympathy seeking but it really isn’t.
Anyway, I’m bagless this morning, just the tube to consider. This will make faster walking a lot easier. It looks like rain today, otherwise I might have considered trying a bike ride.
If anyone ever needs to know about the best way to carry around Nephrostomy or bladder catheter bags, I’m your man That is unless there are members who are doing that already but don’t feel the need to write about it.
I wasn’t going to bang on about this anymore but I’m so pleased to get a bit of good news. The all important eGFR figure has gone up from 15, when the radiologists wouldn’t do a couple of contrast dye scans, to 24. Measures to keep the kidney drained properly seem to be working. Got to see if they will do the scans now.
That is a substantial improvement! Really good news, mart.
Great news Mart…
Looking good Mart and anything it the right direction is good news…
Well done, that man!! FWIW, I have another treatment this morning. It’s two stages - first is a quick blood test then later in the week I have a four hour full test. It is repeated every six weeks.
Thanks It’s surprising how much that rise has lifted the mood. Good luck with the tests Besoeker.
Brilliant news Mart…
Going to have a moan - sorry.
Edit: it was too much of a moan. Just felt a bit sorry for myself for a few minutes there.
Moan away, Mart. It’s a way to get some relief…
Mart, gentle hugs are coming your way xx
Moan away Mart - that’s why we’re here. I hope you start feeling better soon
Not sure if you’ve looked into it, but you might find low carb/ketogenic diets interesting:
Low-Carbohydrate Diets and Prostate Cancer: How Low Is “Low Enough”? - PMC.
For a few minutes??? I feel sorry for myself for most of the day.
Care to explain?
I haven’t got much to complain about unlike some.It was just a joke.
Ah, OK. Like Mart, I have a number of problems - you just get on with it.
Prostate cancer is a bastard but It is just something you live with and monitor until something has to be done.
One of the trials of us old men, on the bright side something else is likely to kill you.
It’s probably not as bad as I think. I suppose people like Phyllis Tuckwell and other medical services need to know about a person’s end of life wishes before the cancer truly makes its presence known. It was discussing the wishes and arrangements for an hour or so with medical people that got really depressing and lead to the deleted doom and gloom post.
I know the Nephrostomy tube and bag had to be fitted because the tumour is compressing the tube that runs between my solitary kidney and the bladder but I’m in no pain with it. With ‘slowing down’ medication, it might be a good while before anything else happens.
The present trouble is that the Nephrostomy incision has become infected (quite sore and not nice to look at). The District Nurse came and changed the dressing but got in touch with the doctor anyway. Antibiotics and a steroid cream have been prescribed but they won’t be ready until tomorrow. The nurse is coming back tomorrow afternoon …to take the dressing off again to apply the cream I expect. It’s painful when touched, so I’m not looking forward to it.
Sorry to hear that you are at a low Mart, best wishes and an ear for you to have a good moan.
From a bloke who after three heart attacks is never sure that he will wake up the next morning but with no pain, I can only guess what tricks your mind must be playing, but I admire you for your sense of humour and fighting spirit…
Moaning is good…