Yes, it does, I use the cheap small bottle from Wilco.
So I saw my G.P. for repeat prescriptions and a chat about how Iāve been. She says that my energy levels should be beginning to lift a month or so after chemo. I certainly hope so: yesterday I was exhausted, going back to bed yet still falling asleep in front of the TV or my computer. I missed huge chunks of the Wimbledon and World Cup finals. I even slept a lot last night though woke up frequently being hot and sweaty.
My appointment was 8:30 but I didnāt get seen until 9:10. I worry about picking up any infections between now and Thursday, even from those in the waiting-room although it was quiet. Iām actually looking forward to my hospital treatment knowing that it will be the last procedure, but itās been cancelled 3 times now due to infection and one time the Consultant cancelled it because it was too close to my next chemo.
Have been very lazy as I canāt travel far; Iād love to be able to go away somewhere for the day - even if it was just North Berwick, a seaside town famed for its fish and chips. Iām eager to get into taking photos again.
Glad you are OK Val J.
Morning Dreamy. I am sure when you have finished your treatment you will have a lovely day away. x
It is really hot at night, I keep waking too.
Fish and chips eh? I fancy some now.
The best Fish and Chips I have ever eaten was in Rye, although I did find a lovely shop in Cornwall.
Actually Dreamy, start a thread on the best Fish and chips in the food section, it would be interesting to see what others say.
The hot weather is not helping us Ffosse, I will be glad when this heatwave is over but I never thought I would say that!
I think you should be ok as far as an infection is concerned, the worst time is just after your last chemo, all to do with white blood cells which I donāt fully understand.
It would be lovely if you could get out more, but I must admit, I never go out on my own now. Do you not have a friend who perhaps drives that you could have an occasional trip out with? I meet my friend Judith every now and again, she pays for the fuel and I treat her to coffee and cake!
The problem with me and other people in cars is my panic attacks.
If Iām feeling really panicky, it could affect the driver as I become very unstable and just want the car to stop and to run away somewhere.
Itās not a problem in trains, Iāve found, as thereās room to move about. And in taxis thereās that partition between me and the driver.
The panic attacks havenāt been an issue for me since the cancer started (probably because my body and mind has a lot more to deal with) but I would still feel nervous in a car.
Sometimes I can manage bus journeys but I live quite far from the nearest bus stop - not too far, but the kind of distance that still exhausts me while Iāve got cancer.
Canāt wait for this all to be over and a semblance of normality comes back to my life. Iām sure youāre the same, Val J.
I donāt live far from a John Lewis (around half a mile but all uphill), Iāll need to stop a couple of times to catch my breath, and I plan on going some day this week. Itās huge inside and I can spend ages just browsing - I really want some pyjamas, plus thereās a cafe inside. That would break up my day and give me a trip of sorts.
In the other direction, thereās a shopping centre called Ocean Terminal. I would need to get a taxi but again, there are lots of shops to browse and an M & S so I can get some of their salads which I love.
Itās ironic that I live close to so many places (Edinburgh City Centre) but the fatigue and exhaustion have curtailed my getting out much at all.
Those of us living in East Sussex know our food ;-);-)
Sweetie darlinā.
Tomorrow I have an appointment with a psychiatrist. This is one which has been cancelled and re-scheduled so many times due to my other illnesses. It wonāt be with the psychiatrist I last had as he took early retirement but someone new.
It will be good to unload and maybe help me see things in a different light. I donāt do nearly enough relaxation exercises or CBT techniques although mentally Iāve been feeling fine.
Then, on Thursday, my treatment which I am looking forward to as the final procedure, the last bit of chemotherapy. I had a chat last night with a Macmillan nurse who knew his stuff regarding lymphoma and treatment. Apparently just 10 years ago I would have been in much worse shape in terms of what they could do for me - one of the cancer drugs wasnāt available then, so I feel lucky.
Still exhausted going out and prone to micronapping during the day, at least I havenāt gone back to bed today and am feeling quite positive about everything. Iāve washed and ironed all my clothes and know what to take in with me and what to leave behind. I should be out of hospital on Monday, my birthday, but longer if there are any complications.
Ffosse, you are doing so well, far better than I am at the moment. Iāve been to bed twice today and could not even contemplate washing and ironing. Iām so pleased you spoke to a Macmillan nurse, they are so knowledgeable and always willing to help. Having said that, Iāve not seen or spoken to mine in over six months, but I know she is there if I need her.
Good luck tomorrow, I have another chemo session that day and Monday could be quite an exciting day for you.
Good luck with your next chemo, I think youāve been doing fantastically well. Some days itās impossible to resist going back to bed, itās best to give in to those moments.
Yes the nurses are wonderful and itās a free service; Iāve used macmillan quite a bit during my current illness.
I wake up during the night at times and put the light on for 10 minutes or so while I have a vape (something Iāve not been able to give up). I had a strange dream last night which involved my earphones - Iād fallen asleep with them still attached to my ears.
You are both doing well.
I hope you are home for your Birthday Dreamy.
I will start a thread here anyway like I did for you last year.
The McMillan nurses are very special, they supported me and my Mother.
To you both:lol:
This hot weather makes me sleepy too.
The psychiatrist was a waste of time. Twice she asked me to leave the meeting so she could take a call on her mobile. After the second time I asked her, āwhy donāt you have it on silent during meetings, I do with mineā She then got very flustered and apologised.
Iāve got another appointment with them in mid September but Iām not holding out any hope. Psychiatry generally takes a back seat to haemotology and oncology in general. Not much you can do until the primary disease is treated.
OMG how rude to leave the phone on, let alone take a call! I would be putting in an official complaint Dreamy. You are meant to feel safe and able to talk, not come away feeling that you were in the way.
I am sorry that you did.
She barely asked me anything at all. I donāt think she even asked me how I was feeling.
Oh Dreamy, do you feel up to putting in a complaint?
It has riled me today. They get paid a LOT of money.
I am always here to listen. You have my email.
No, Iām not putting in a complaint; her predecessor was excellent with me over a number of years, diagnosed my bi-polar, helped greatly with my panic attacks etc. I suppose with the psychiatry Iām just trying to cover all bases in my health care. Mentally Iāve been fine - frustrated at times, scared at others, but nothing beyond the normal parameters of a cancer patient. But things could get worse mentally for me and Iām trying to stay on top and be proactive now. Iām going to have a word with someone at the hospital tomorrow.
And Macmillan have been excellent with me, both in replying to an email and having quite a specialised phone call with one of their haemotology nurses the other night.
Iāve just re-read the entire thread and it was interesting to find out what happened and when. That, plus my reactions and the goodwill of other posters on here. Tomorrowās should be my last procedure. I just have another MRI and CT scan to get through and I see the Consultant on the 9th of August. I feel OK apart from the fatigue and the back pain, but Iāve felt a lot worse in my life. During my first cancer the chemo was a breeze, virtually no side effects; this time itās been much tougher. Also, last time I didnāt have any infections just Delirium which was bad enough. Iām so glad I didnāt develop Delirium this time round.
I appeared to be in remission from the Hodgkins Lymphoma, going by my 3-monthly checkups. This time around they didnāt think it was cancer as the top of the spinal column would be a very strange place for a Lymphoma to appear.
Unfortunately, it turned out to be another cancer - non Hodgkins Lymphoma of which there are about 100 sub-variants. Iāve been lucky, though, it really is the best hospital in Britain for such cancers.
I am glad you are so positive Dreamy.
You have always remained in my thoughts and prayers.
I will be thinking of you tomorrow. x
Will be thinking of you tomorrow too Ffosse, try to remain as positive as you are today. 
Slightly nervous - i just hope they donāt find anything wrong with my bloods beforehand.
Iāve arrived and Iāve got my own room, at least for tonight anyway, they could move me again.
Dreamy we are rooting for you.
Stay positive my lovely.