So, they want me in hospital at 1pm tomorrow. There shouldn’t be any problems with my chest infection having disappeared over the last 7 days.
I’m not looking forward to the disruption in my routine. That and the closeness of my chemo next week. If they let me out on Tuesday, I’ll still have to go back on Wednesday for my final chemo session in a different ward. I hope I’m OK enough to be discharged on Monday; that way I’ll at least have a day in between of rest.
But I can see the end of my treatment coming; no doubt there will be follow up appointments (I have one for August) but the less I see of the hospital the happier I’ll be. Don’t get me wrong: I’m gratetful for everything they’ve done for me but cancer treatment is wearing, the fatigue being the worst symptom. Today I hardly made it to the Co-Op and back I was so tired, the heat didn’t bother me (25c) it was just from walking a short distance.
I’ve had a siesta today too Ffosse, I tried sleeping in the chair but that didn’t work so took myself off to bed. Didn’t have long but trying to stay up tonight so I’m tired when I go to bed. Just listening to a Dire Straits concert, fabulous and it’s keeping me awake!
Hope all is well for you tomorrow, it will soon all be over and then you can start the recovery process. I have no idea how long my treatment will go on for. I see the oncologist on Tuesday so may know more then.
The fatigue is awful, I want to get back to normal but I just don’t have the energy. Sleep well.
We posted at the same time. Sorry that you have been so fatigued - it really is the worst thing. I find that I am OK (if not sleepy) at home watching TV, but as soon as I have to do anything energetic the fatigue hits me.
Val, if you want to go back to bed then that is probably the best thing to do. Your cancer treatments will be causing this fatigue, but the hot weather will also not be helping, so take rest when you feel you need it!
I know how you feel, throughout my Chemo all I wanted to do was go to bed & the radio therapy wasn’t much better… but you start to get back to normal eventually.
I always believe that you should fight the illness, but give way to the side effects of the treatments. If it gets unbearable have a chat with your oncologist, he may be able to offer extra advice!
It’s not what I would call unbearable Twink, sometimes I think it’s me and I should pull myself together! I see my oncologist on Tuesday so I guess I have to make another decision on what happens next!
I’m getting ready to go to hospital. I don’t really need much for a 4 day stay - just a few changes of clothes, toiletries, my medications (the hospital insists I bring my own), my phone and charger.
I imagine I’ll be bored a lot of the time so am going to try and get into reading again.
Scratch that, they’ve phoned me up to cancel again.
They said that the methotrexate would be too close to my regular chemo next Wednesday, so now they plan on having me get my normal chemo on Wednesday then bringing me in for the methotrexate the week after, the 13th or something.
So annoyed at having packed everything up and anticipating my hospital stay. I feel that they should have realised this last week and made the appropriate appointment then. I’m at a bit of a loose end now - I need food as there’s nothing in the house.
Val never be afraid to ask questions, no matter how silly you think they are! Your oncologist is there to advise on your treatment, and you can only make decisions if you fully understand what he is talking about.
You know where I am if you want to ask me anything, but you can only get advice on your treatment from your oncologist… so he should be telling you the pros and cons of any decision you have to make!
That really is too bad Ffosse, letting you down at this late hour!
I agree they should have realised their mistake and sorted it earlier. Could you get something delivered for your lunch, a nice Chinese or similar. We usually find that the meals are substantial and provide us with more than one meal. Other than that you may have to pick up a few bits locally until you can arrange another delivery. I really do feel sorry that this has happened to you Ffosse.
