I’ve only just taken my steroids having missed them at breakfast. The problem was that I have 2 other medications to take at least an hour before breakfast (have to leave my stomach empty for an hour before taking the steroids and completely forgot about the prednisolone). I don’t suppose it will matter much, though - I’ve had doses at odd times before.
Had a mostly quiet day watching the football - feel like I’ve no energy at all but did have a bath and shave and washed my clothes.
Have a good nights sleep Dreamy.
They’ve taken me off the steroids Ffosse and I’m missing them as they gave me a much needed boost. I did find it difficult with the times I had to take them though as I had to take 3 a day at regular intervals with or just after a meal. My meals are not evenly spaced like that!
Yesterday was a bad day for me and at a time when I should be at my best! I went to bed for a couple of hours in the afternoon which is almost unheard of!
Pleased you’re enjoying the footie Ffosse, it’s not my thing nor hubby’s so no football in this house!
Sorry that you’ve been taken off your steroids but this can only be progress if they think you don’t need them.
I’ve gone to bed at odd times, too, though my sleeping seems to be more regular lately except one day when I woke at nearly noon.
I’m feeling OK today, managed to get out to the chemist and then the deli which had a number of reduced prices. Their pies, sausages rolls are award winning.
I got a couple of rolls (corned beef and salad and cheese and coleslaw) and a reduced pot of fruit salad then walked home. Might be my imagination but I think I felt slightly less fatigued than normal; still, I had to sit on a bench halfway back to catch my breath.
My thoughts turn now to my 4 day stay in hospital from Thursday onwards. It’s just the disruption to my routine (such as it is) that I dislike. I’m sure I’ll be fine once I am there. All the staff are friendly and helpful and I’m still hoping there is a way I can get the chemo during the day (I’ll have to insist on it) so I don’t chew the drip at night. I can’t help my strange nocturnal behaviour, it, too is a consequence of being in a strange environment.
Once this stay is over I only have one chemo session left on the 4th of July then an appointment with the Consultant in August. I really am hopeful that this will be the last treatment I need bearing in mind that this cancer is different from the last one.
Sorry Val is feeling drained.
Dreamy you will be fine.
You have determination. X
I suppose I am quite determined. Posting on here has greatly helped me focus on the minutiae of what I must do and it helps getting feedback in general from others, particularly those in the same boat such as Val J but I welcome everyone’s comments.
Next I’ll have to phone Ward 8 and ask them what time they want me in. Last time they said 12 but it was 8:30 at night before I got a bed in Ward 33, all that time waiting in a small room at the back of Ward 8 did my head in…well perhaps I exaggerate but it was a bit stressfull. It depends upon how busy they are. I’m also hoping for a single room again.
A good thing is that, barring any complications, I know they’ll let me go home on the Sunday or Monday, ie. it’s not open ended. During 2016’s illness I never knew when I would be going home but I was very ill with the delirium. I never want to be that mentally ill again; and it took them a while before they realised I had delirium.
Good news: Ward 8 just phoned me asking that I go in at around 1pm on Thursday. They also made clear that they’re aware of my night-time problem so they’re not going to use the chemotherapy drug at night, rather during the day.
This has put my mind at rest - I was going to phone them but now don’t have to.
That is good news Dreamy:lol:
As for your previous post, I remember that time very well.
I think you are so positive this time. It is nice that I can support bot yourself and Val here, and that you, in turn, support each other.
That was the only time in my life when I could have been described as mad. I had to be sectioned as I kept trying to run away. It took them ages to diagnose the delirium
Nightmares, paranoia, delusions etc. I thought that outside was Russia and that they were going to shoot me. I still don’t remember all the details but it went on for around 6 weeks in total and I lost more than 2 Stone. A psychiatrist explained to me later that the delirium was definitely caused by the cancer.
That is terrifying memories for you. But, this time you really are so positive. Don’t forget to take some movies with you, for your stay. You could start a thread asking for recommendations, as I don’t know your taste in films.
Oh, I’ll find something on Netflix for sure. I quite like international movies, French, Spanish, Australian etc.
Part of the problem for me for ages was that I could only concentrate on anything for 15 minutes but that has passed. I’ve also got a couple of books I need to finish and will have the time in hospital to do this. One audiobook which I listened to the first 3 chapters about a week ago has been completely forgotten so I’ll have to start again but I’ll do it because it’s part of a series I’m keen on.
Hi folks. Sorry I’ve not been around much these last few days, I’ve actually not been feeling very well at a time when I should be feeling my best ready for my next chemo on Wednesday. I don’t know what is wrong but I’m so tired all the time and now I’m having trouble sleeping. I try not to go to bed before 10 pm but after an hour or two I’m awake again. I’m going to take a couple of paracetamols before bed tonight to see if that helps.
Ffosse, it’s lovely to hear you sounding so much more positive and great that you are coming to the end of your treatment.
Sweetie, has your son heard anything yet, hope he is doing ok.
Take care both of you. xx
So sad that you’re not feeling well, Val J - it sounds like the chemo might be having a cumulative effect. I’ve had periods where I’ve felt dreadful and not known why then a few days later I’m ok again. I do hope you feel better soon. You shouldn’t be afraid to tell your GP and the nurses at the hospital just what’s been going on and how you are feeling.
Take care.
Sorry to read you haven’t been feeling too well, Val … I hope things start to improve for you soon.
Ffosse, it’s good to hear you’re feeling more positive and I hope all goes well for you when you go into hospital on Thursday.
We are all supporting both you and Val here and sending best wishes to you both.
Thanks, Mags.
Val my boy is fine now, he was given some anti-inflammatory drugs, they seem to have sorted the problem out. The CT scan came back normal thank goodness.
Now the other twin has a problem with his leg swelling!
I think he hit a varicose vein, so does his GP. We will keep an eye on him.
You will remain in my thoughts and prayers as always.
Good luck for tomorrow my lovely.
Just as long as you have a distraction Dreamy.
Sweetie, I’m so pleased to hear the CT scan came back clear and that your son is well now. Hope your other son recovers quickly too. Thank you for your kind thoughts too. I’m feeling a lot better today, early start tomorrow but it will soon be over!
Thank-you Val. I am really glad you are feeling better today.
Chemo, when you are feeling rough, makes it worse.
