My Mum said the same Dreamy. I can understand that.
What about your thoughts on a hospice?
Have you now shelved that idea for now?
If you can remain in your own home, it will be better.
You could use your PIP for some help. Just some thoughts from me.
Iām not out of the woods yet being just halfway through treatment (it seems longer since it was February 8th I was first admitted to hospital, but Iām forgetting the radiotherapy I had done then), but at least I can see the light a bit. If things go bad then Iāll be thinking of hospices again.
The dizziness is probably brought on by the chemo side-effects or all the drugs Iāve been taking. Same goes for the stumbling around when Iām in the house or my awkwardness at walking outside. Still, Iām sleeping well and have an appetite - those are normally the first two things to go when Iām ill or am really upset about anything. And the Consultant seemed happy that he had good news to give. My first PIP payment, not including the backdated one they gave me, is on Monday coming.
I was up at 7:30 and should sleep well tonight; my chemo starts at 10 so I hope to be in bed by 9 or so listening to my podcasts.
I just got the new Stephen King book so may have a read of that. Right now Iām reading The Last Days Of The Romanovs - cheery stuff.
Dreamy donāt take me wrong my friend, how about using a stick outside, to steady yourself???
I do like Stephen King. You must let me know about it, please.
Lovely to hear your good news from the consultant Ffosse. Also that your chemo tomorrow takes you over the halfway mark. I have no idea at the moment how long my course is but I had 9 cycles of the last one. Good luck for tomorrow anyway, hope itās a quick session.
I feel light headed when Iāve had my chemo but I wouldnāt quite call it dizziness. I also bump into things on a regular basis, fortunately I walk very little on my own outdoors, I need supportive or I get out of breath.
I thought about a stick too but donāt need one when Iām with hubby, itās just if Iām out with my friends, although one friend did offer to let me link arms with her. Bless her! I guess men may get some strange looks if they did that lol!
Thank you both - Iāve actually got a stick, given to me by someone in hospital for arm exercises, donāt think I need it quite yet, though.
For some reason I overslept and must leave in about 25 minutes or so. Last time I was finished by 1:30 so hoping for something similar today.
Am in the hospital now, getting my arm warmed up for infusion.
Iām taking my son to hospital very soon.
I was about to reply to you Dreamy, when I had a funny turn. Flashing lights and dizzy.
Lot of use I am eh?
Chat later my friend. X
Take care Sweetie darlinā :hug:
Theyāve got me on different drugs this time so will take a bit longer.
We will do updates later.
I have just got home. x
I hope it all goes well for you Ffosseā¦
Well todayās chemo is all done, but it spawned a further 4 appointments with the nurse, 3 to have blood taken in addition to the blood I get taken two days prior to chemo and one to have the drug Iāve to keep in my fridge injected on Friday.
Iām sick of appointments - it got to the stage where they were clashing with each other and I had to sit down with the haemotology nurse and sort them all out on my phone today. I just want my life back - not to have to turn up for something new every Monday to Friday etc. Itās not fair on me to have to go to the hospital on consecutive days for what could have been 1 day.
Otherwise, I got the usual dosette of pills including 4 days worth of steroids. The nurse today assured me that they werenāt just to make me starving but have other effects countering the chemo.
Oh dear Dreamy, I know you must feel it is taking over your life.
I hope that all this is going to make a difference, it is just exhausting getting there. lol
It has taken over my life for the moment - at least there are no appointments on Saturday or Sunday.
TBF it is all for my own good, I just had no idea it would wear me down so much - the chemotherapy plus all the appointments.
It does take over your life Ffosse, I have four regular appointments every fortnight, then thereās the scans and consultant appointments too. My days have changed for next week with it being a bank holiday. It makes it very difficult to make plans.
Yes it does.
Iāve realised, though, that all my appointments are with my local nurse until the 12th. I donāt have to go to the hospital until the 12th for my CT scan, then Iām at the hospital quite a lot for a while including my 4 days or so in-patient methotrexate treatment.
So I have to look on the bright side - at least I can walk to my G.P surgery without being too much out of breath.
The methotrexate worries me a little. I have a tendency to walk or act out when Iām sleeping and last time during the night I bit through the drip twice on consecutive nights (it didnāt matter much as it was just saline and bicarbonate of soda, but what if I had bitten into it when it was the chemo drug?).
The methotrexate is given in one long 12 hour infusion, whilst the saline and bicarbonate are infused continuously - Iāll have to see if I can be given it from, say 10 'til 10pm to avoid anything nasty happening.
Anything can happen when Iām asleep in hospital - itās just with it being a strange environment; Iāll sleepwalk but usually a nurse will be able to guide me back to my bed. Perhaps thatās why I bit through my tubes last time? Iād be unable to sleepwalk with a machine plugged into the wall.
It sounds as though you have as many if not more appointments than me, Val J. Do you have someone to drive you to the hospital and back? How far is it? Whatās annoying about mine is that they are all departments in the hospital within different buildings so is sometimes tricky getting a taxi back unless they have an exact address.
Felt a bit rough earlier but have been eating and drinking normally. My temperature was 38.5 at one stage but has come down now.
WHAT??? That must have been scary Dreamy.
Glad your temp is OK now. lol
I just hope I havenāt picked up a bug as sooner or later Iāll have to phone Haemotology and it will be a visit to Ward 2.
I slept a bit from 4 to 6 and felt better for it.