I had chish and fips, 
Itās a long time since I heard them called that lol! :shock:
It was quite the surprise for me. I now wish I had applied for it when I first got cancer in 2016. The money will come in handy - Iāll no longer feel so bad about taxi fares or treating myself occasionally.
I was just using my savings although, admittedly, the watch put a huge dent in them. Mid-life crisis I think but I wear it every day except when Iām in hospital.
On June 21st Iām to have exactly the same treatment as before, with the methotrexate and bicarbonate of soda - Iāll be in hospital for another 4 days hooked up to 2 drips. They try to get you to take 6 bicarbonate of soda tablets every 3 hours for the 24 hours before you are admittedā¦I just couldnāt do it, made me feel sick so was infused at the hospital, more time-consuming but I donāt know anyone who could manage the sheer number of tablets. And every 3 hours? What about when Iām asleep?
Not worried about todayās appointment at all. I find CT scans a lot easier than MRI scans or the actual chemo.
Those three days of steroids made me ravenous - I was almost eating without thinking. Iāve been eating a bit less recently (and healthy stuff - fruits and salads) to keep the weight down.
You have your PIP for exactly all those expenses.
At least that is sorted.
Why not treat yourself occasionally.
You are coping brill my lovely. X
Iām wondering what the Consultant will say when we meet on the 22nd. Iām sure it will be OK news and just to continue treatment.
Iām exactly halfway through my treatment this time - 3 chemo sessions plus the methotrexate, 3 more to go and another methotrexate.
I am not good at taking tablets either Ffosse, especially if they are big ones or not coated.
Me too Ffosse and Iāve never been a big eater, but we canāt do to be losing weight either!
You are doing really well Ffosse, Iām sure it will be the best news for you. The consultant gave me the choice as to whether to continue treatment or not, I chose to continue.
Neither of you should worry about putting on a little weight. Iām here rooting for you both. I wish I could put on a little weight.
My thoughts and prayers are always with you both.
Thanks, Sweetie.
If you stop smoking and start vaping, I bet youāll put on some weight.
Iām going for an Indian Head Massage next week - Iāve had it before but it was a year ago. The woman starts massaging the shoulders and neck then moves upwards. Just the thing to relax. I do still get neck aches, more like a stiff neck, since my 2 surgeries. Plus, Iāll be able to show off my scar.
Just had a bath and no sign of hair loss yet but, and this is quite strange, itās not growing, either. Normally Iād buzz-cut it once a week but havenāt had to yet - it feels like itās been freshly shaved.
Yes, I was given the choice of whether to have the methotrexate or not, then had to sign a disclaimer because there were potential but very rare side effects. The only side-effects I got were the painful mouth ulcers but they only lasted 2 or 3 days. I think the anti-biotic I got on Monday plus the mouthwashes sorted those out.
Taxis or taxesā¦or both? 
Iāve paid my taxes - I mean my taxis, of which I am about to order one in an hour to take me to the hospital.
Scratch that - Iāve developed a killer migraine with blurred vision. Managed to cancel the appointment with not much notice.
Am going to try lying down after taking 2 Oxycodone - I hope this helps me, I donāt feel good at all. I hope the nurse and consultant are understanding - I see them next Tuesday
Lying down for 10 minutes has helped a bit. I just feel strange, woozy and with the headache which is easing slightly. I donāt think I could have coped today.
I did phone the Clinical Haemotologist and she says that they should still have enough information on Tuesday even without the CT scan.
I get panic attacks, and with this sudden migraine/headache/dizzy feeling felt that I couldnāt have coped. What if I had a panic attack in the taxi? Or at hospital?
Itās strange having both physical illnesses and MH problems. Up to today my anxiety levels had been normal. Odd, but I think my having a bath triggered it off.
You did right to cancel the appointment Ffosse, hope you are feeling better now.
The pain is easing; what was scary was the blurred vision; I thought I was having a stroke.
Feel bad about cancelling, but at least I managed to give them a little notice so thereāll be more time for other patients.
And I phoned my clinical haemotologist to let her know - they probably know more about my health than me, itās just that the MH side of things hasnāt popped up until now with this combo migraine/panic attack.
EDIT: Thatās not quite true - when I was in hospital in 2016 I was psychotic with delirium and it took them weeks to control it.
In hospitals Iāve always had problems at night when Iām sleeping: whether itās getting into someone elseās bed or wandering through the wards sleepwalking.
Last week at night I bit through the drip tube twice (I couldnāt help it, didnāt know what I was doing) but was fine once the nurse had seen to it. A good job it was just saline instead of a chemotherapy drug. I must mention this to them next month: if I could get all my chemotherapy infused during the day.
It seems to be strange places where Iāll sleepwalk during the night, often not coming to until I come across someone who recognises that itās sleepwalking. I did this in a B & B once, awakening in the ownerās kitchen in my pyjamas. They made me a cup of tea and I was alright again.
Just as long as you are alright now Dreamy.
I know all of this is difficult, but you are doing well. x
Come this way Sweetie darlinā - a few meat pies or Cornish pasties from my local pie shop * followed by a couple of Cherry and Custard pies will soon have you gaining weight!!!