I’ve found a toilet I can safely vape in whilst battery attached to my machine - it makes such a difference to a dull day here.
Where there is a will, there is a way Dreamy.
Thinking of you.
This is taking forever - can see it going on til seven, that’s 10 hours of chemo. Bored doesn’t begin to describe it.
Sorry I missed you Dreamy.
I’ll pop back later.
I forgot just how much chemo is a process and you can’t take the drugs until they are ready and you are ready for them.
The first batch took 4 to 5 hours - an extra hour was added as my blood pressure was way low so they introduced them more slowly. There was no real discomfort or pain - slight dizziness which is normal.
The other drugs were more like an hour each and they didn’t physically hurt me, either; it’s just sitting in that chair - a phone soon becomes boring.
Then there is my dosette box for the next 7 days - tonights dose is 13 tablets, it reduces from there on until it’s just a single tablet a week from now.
Then there are the extra appointments - ones I must make with the nurses at my G.P. to get my weekly bloods and one with Dr Broom on the 23rd.
I wouldn’t wish chemo on anyone - they do it very efficiently given all the science and tech they have - my next appointment should be half the time: 1pm sounds a lot better than 6:30, I can’t believe I was sat there for 9 and a half hours. Still, that wasn’t really their fault, nothing could be done about it.
And the staff were the same as the last time I had chemo; it was interesting catching up on their lives, too.
Will it save my life? It did last time for 18 months but the cancer came back in a deadlier form, can’t say that is because of the chemo. Everyone medical remarks to me that around the spinal chord is an extremely rare place for a lymphoma to occur - rare as in it could well be written up for a paper.
I just had trouble raising my arms, couldn’t put my jumper on, thought it was because I’d fallen on the ice. But the doctor described Carpal Tunnel’s Syndrome - turned out that wasn’t strictly accurate either. A tumour was pressing against the nerves in my neck causing the symptoms. I was fortunate in that an MRI showed this.
Deep down, though, I knew something was off last autumn: no physical signs but I just didn’t feel right and Christmas was miserable - this was the cancer working on my mind, I believe.
Oh Dreamy, what a day for you!
Glad that bit is over.
If I lived near you, I would sit and read, or talk with you.
I bet you are exhausted.
I hope you sleep well tonight.
I’m sure I will. It’s strange, but sometimes I awake at 3 or 4 and half asleep I see my hallight on and imagine I’m still in hospital. It’s kind of comforting.
So long as you feel safe, that is the important thing Dreamy.
How are you feeling today Ffosse?
A bit rough - I had an hour’s slow walk but my tummy has been playing up today and I’ve been feeling very tired in general. The clinical head nurse says this is normal, I’ve been through a tough time and I’ll have good weeks and bad weeks. I’m glad I live close to the co-op which, though expensive and small, does sell some nutritious food.
Today has been spent mainly watching You Tube.
I hope you have a restful night Dreamy.
It was a bit restless but at least I did sleep.
That is good Dreamy.
Stay focused, I am here for you.
I’ve done nothing but web-browse all day.
Yes, I know.
I saw:shock:
Going to bed at around 8:30 to listen to a few podcasts.
Good Night Dreamy.
I hope you sleep well my friend.
I feel better this morning than in a while. Last night I discovered that I had only being taking 15mg of my anti-depressant instead of 45mg since the time I left hospital. They must have just had the 15mg tablets in stock. So, effectively, I was on a much reduced dosage.
I actually feel happier this morning as a result of realising this and going back up to 45mg.
Hopefully this will be another restful night of sleep. Are the podcasts helping you sleep or do they put your mind into overdrive? What subjects interest you?
I am glad you feel happy today Dreamy.
I hope this continues.