Chemotherapy - please share your experiences

Slightly off on a tangent here, but in the last week I’ve been househunting and found a house I like. But my brain really struggled to engage in sorting out making an offer, and I had some anxiety about it one night, something I have never suffered from before. All fine now, and my second offer was accepted so I feel quite relieved. But I’m sure the brain fog is a lasting effect from chemo, as well as perhaps a side effect of a tablet I now have to take. It’s the pits that even when intense treatment is over, some effects linger on…

I think many of the side effects of chemo may take a while to disappear but I’ve not had a break of more than a week or two in the last 10 months so can only go by what I hear. Hope your house move goes well anyway, orangutan.

Thanks Val. Hard to imagine how debilitating it must be for you to be on such constant chemo. I don’t think I could cope with that.

Hi

Being on Chemo affects you.

It is not something that I have ever experienced, however the strong medication that I have been on certainly affected my ability to make decisions.

I still feel washed out, but things are getting better, but much more slowly than I would like.

The experience has certainly given me an insight into what it must be like for those on Chemo.

When I finished my first round of chemo and was asked if I’d like to continue, I didn’t feel too bad, I more or less had a bad week followed by a good one. Now I’m getting towards the end of my second round and I’m feeling totally drained most of the time, I’ll not be so quick to accept more but at the moment I don’t know what the alternative is.

So where is this new house located Ania darlin’???

In Cumbria, UJ.

A long, long way away from me:cry:

True, UJ, but I will likely visit friends in Norwich and Herts now and then so may be able to add you to my Southern Circuit…

Ania darlin’ - you would be very welcome here anytime you choose to visit this part of the world. We can always return to the Sabai Thai restaurant.

I couldn’t handle being on chemo for so long - I’m still suffering the side effects of it.

Chemo is pure poison tbh so its to be expected that the effects will be long term and possibly ongoing…
If I had to have chemo treatment again id seriously have to consider wether its a route id want to go down again. I have serious aches and pains and imo its all stemmed from the poison I had to have for 6 months and this was 4 yrs ago now .
Im convinced its the after effects .
I still have peripheral nueropathy slightly in my feet and fingers…

Aysa, I thought very long and hard before deciding to accept chemo. And I will not do it again. Quality of life is more important than quantity to me.

It’s such a difficult decision though, so much depends on family and they are desperate for me to get well.

I still get this with my fingertips Aysa - and my treatment ended in 2012. It is easing off, but VERY slowly. Hopefully yours will ease off more as time goes on as well…:wink:

It must be your own choice in the end Val.
Chemo affects us all differently in both the short and long term.
Good luck whatever you do / decide…:wink:

Val, each of us has his/her own motivations for what we do. You have your lovely family, and clearly they are a factor in your opting to continue chemotherapy. Ultimately, of course, it is your choice of what feels right for you.
At the risk of repeating myself, I have noone in this world who will be too adversely affected if I choose not to have further treatment. So making my decision is undoubtedly easier than it is for you. I feel lucky in that, really, because any decision I make does not affect other people.
It is much more difficult for you, and I recognise that and wish you all the very best.

I’d have to think long and hard about whether to undergo a third round.

The first time I had chemo (for a different cancer) while not particularly pleasant was nothing compared to my present issues. I don’t think I even had 1 infection, but, like orangutan 2, I only have myself to consider.

I have slight peripheral neuropathy in both hands but my sore back (and I’m assuming it’s the chemo) along with the fatigue is very tiresome.

Ffosse, I had to think long and hard about whether to undergo chemo at all in the first place, so I can empathise with what you say. In the end I opted for it to give me time to hopefully do a bit more travelling and spend my savings. What’s left will go to charities.

Thank you all for your comments, it is always good to hear different people’s points of view. I have a CT scan in a week followed by an appointment with the oncologist. I guess the scan will be the deciding point in the treatment.