Saw the oncologist this morning and he’s agreed to carry on with the treatment when this course finishes in three weeks. Good news!
You deserve good news because you have had a very positive approach to this!
My oncologist really believed that my positive attitude is what helped me defeat the illness. I hope yours does too!
Thank you Twink. I am sure you are right about being positive, where cancer is concerned you have to believe you are going to win the battle and I am surrounded by positive people, at home, hospital, family and friends. I WILL get there!
I’m sure you will.
I think I’m less positive as this is my 2nd cancer in two years, the 2 not being related, just bad luck. I’ve learned not to eat anything whilst getting chemo although they do come round with trays of biscuits and sandwiches, it just makes me nauseated. A small cup of coffee will do me.
But Ffosse, you’ve beaten it once, so why not again. People do!
We get tea/coffee and biscuits and lunch but like you, I don’t really feel like eating when on the unit. Fish & Chips from the chippie when I get home, I so look forward to those!
This time it’s not curable, only treatable, so I think I’m always going to be having some contact with the hospital.
Yes, it’s good to eat after chemo - fish and chips sounds great, I might have a Chinese.
In hospital I was seconds away from eating my fish, chips and peas lunch…I had lifted up the fork when they told me I was nil by mouth as I was getting surgery the next morning.
That does make a difference of course but you do hear of people living several years with incurable cancer. Positive thoughts Ffosse!
Once, was a breeze, second time round is much harder and more complicated.
I can understand why people don’t want to go beyond having chemotherapy twice; there comes a point where it’s not really life saving but just prolonging the pain
Well, it is the first time for me, but I have signed up for more cycles! My biggest problem is that I have to visit the hospital at least once every week which makes holidays difficult. My brother in law lives in France and we would love to visit but not sure it’s manageable.
Try to make some plans for your better days Ffosse, it’s good to have something to look forward to.
I will try, it’s just this not getting out much which is killing me. Places I used to go to are no longer accessible unless I stop and rest all the time. I can’t remember whether or not I got side-effects from my last chemo as I developed infections and was hospitalised. I’m assuming some of my dosette drugs are steroids which generally make me feel better.
I’ve heard that the weather is going to get a whole lot warmer (here it’s still like Winter) and I would like to get out and do things.
[B]
I have the same problem Ffosse, I get out of breath very quickly and keep having to rest. I think it must be caused by the chemo. I have a Blue Badge now so parking is not usually so much a problem. Do you have Macmillan nurses or something similar in Scotland?
I’ve not heard of dosette drugs, what are they?
I heard the weather is about to get warmer too, not before time!
I not had a line, but a friend did , also Ive spoken to patients in the clinic who have got a line. I have also been having chemo, which did help, but for the last few months ,due to my breathing problems I have not had any treatment, but Ive had a couple of scans which shows no change in my cancer
We have Macmillan nurses and blue badges - I don’t drive, though.
A dosette box is a large pill tray with containers for breakfast, lunch, teatime and night for all your pills for 7 days or even longer. I’ve just got a 7 day one. Looking at what I have to take tomorrow morning, there are 13 tablets. That’s on top of my normal medication.
[/B]
Deylon that is good news about your cancer, hopefully you’ll be able to continue your treatment before too long.
Good luck Ffosse.
I’ve been through chemo and had a line for 8 months.
Keep your chin up.
I have a friend who’s had countless bouts of cancer over many years and she’s still here…
You can do it, just try to remain positive.
It’s annoying when something gets in the way of a chemo course, but the Consultant I spoke to said that it didn’t really matter unless there were radical changes in the cancer.
You could maybe have a Macmillan nurse though Ffosse, they are there to offer advice, only 9-5 Monday to Friday though! Someone else to talk to on the days you don’t feel your best. I know what you mean by a dosette box now, I didn’t realise that is what they are called.
Well, I’ve now finished my first course of chemo. I had my ninth and last cycle yesterday. What I have noticed is that after each cycle I have felt more tired and groggy! However, I’ve signed up for more and they will continue for another few weeks I guess. I have another CT scan in three weeks and then see the consultant shortly after, so we’ll see what happens next.
I was losing quite a lot of my hair and my silver parting was getting wider and wider, so went to the hairdressers for a trim and came out with a crew cut. I hate it and can’t wait for it to grow again, trouble is it’s not growing very quickly at the moment.
Anyway apart from that I guess I’m coping quite well.
Val I lost all my hair when I had chemo, but when it came back it was so soft and silky, like baby hair.
Within 3 months it looked like a very short style, and after that people were astounded at how quickly it grew.
It is now back to my shoulder blades, but I don’t think I will get it back to my waist.
I don’t think I shall ever have long hair again Twink, and I doubt whether I shall colour it again. It’s just that I can’t do anything with it, it just stands up on end!